DisabledInAcademia | Reisenauer Family Associate Director of External Engagement at University of Notre Dame in Notre Dame, Indiana, United States

Reisenauer Family Associate Director of External Engagement

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University of Notre Dame

Location: Notre Dame, Indiana
Category: Admin-Other Administrative Positions
Application Deadline:

Job Description

Job Title

Reisenauer Family Associate Director of External Engagement

Job Description

Welcome to the heart of scientific excellence at the University of Notre Dame. We are seeking a motivated, scientifically driven individual to join our dedicated team in the College of Science as the Reisenauer Family Associate Director of External Engagement in the Boler-Parseghian Center for Rare Diseases.

Why should you apply?

At the Boler-Parseghian Center, we are advancing research, advocacy, and education to improve outcomes for individuals with rare diseases. Our collaborative environment fosters meaningful partnerships and innovative solutions to tackle the unique challenges in this field. As a key team member, you’ll work alongside leading scientists, advocates, and policymakers to make a tangible impact in the lives of patients and their families.

If you are passionate about rare disease research and thrive in an interdisciplinary setting that values innovation, teamwork, and purpose-driven work, we invite you to apply for this rewarding role.

What You’ll Do

In this pivotal position, you will connect science, advocacy, and policy to drive progress in rare disease research and improve patient outcomes. Your responsibilities will span external engagement, program development, communication, and operational management.

Key Responsibilities:

External Engagement and Partnerships:

Leverage scientific knowledge to cultivate relationships with academic institutions, clinicians, industry partners, government agencies, and patient advocacy groups.
Pursue and manage public-private partnerships to enhance rare disease research and treatment innovation.
Establish and support global research and advocacy collaborations with other rare disease organizations.
Represent the University at national and international conferences, workshops, and meetings.
Identify and pursue funding opportunities from federal agencies, foundations, and corporate partners in partnership with Notre Dame Research and the Office of Corporate and Foundation Relations.
Ensure alignment of external engagement efforts with strategic priorities of the Center.

Program Development and Management:

Collaborate with the Executive Director and the Director of Patient Advocacy Education and Outreach to help develop and implement programs addressing gaps in rare disease research , advocacy, and education.
Integrate patient perspectives into research and advocacy efforts.
Monitor program success, share progress with stakeholders, and implement improvements.

Communication and Outreach:

Provide content for the Center’s websites, newsletters, and social media that resonates with diverse audiences and increases visibility of the Center’s initiatives.
Help organize and participate in outreach events, seminars, and symposia to promote collaboration among global experts.
Coordinate with internal and external partners to provide a comprehensive resource for the patient community.

Administrative and Financial Management:

Assist in budget preparation, grant administration, and resource allocation for the Center and the Patient Advocacy Initiative.
Help ensure compliance with University, state, and federal regulations.

About Us:

The Boler-Parseghian Center for Rare Diseases at the University of Notre Dame is committed to providing a “RAE of Hope” for critically ill and overlooked patients through Research, Advocacy, and Education. The Patient Advocacy Initiative is a critical aspect of the Center’s rare disease efforts, advancing advocacy and education to better serve the rare disease community and train the next generation of rare disease patient advocates. . Our mission is to lead the fight against rare diseases by integrating groundbreaking research, international collaboration, and comprehensive advocacy programs.

Join us in our mission to make a meaningful impact in the rare disease community.

Minimum Qualifications

Bachelor’s Degree in public health, life sciences, medical research, or a related field.
Demonstrated medical and/or scientific acumen.
Proven interpersonal, communication, and relationship-building skills across diverse stakeholders.
Strong organizational and problem-solving abilities, with the capability to manage complex projects.
Passion for rare disease advocacy and research with a commitment to improving patient outcomes.

Preferred Qualifications

Advanced degree (Master’s or Ph.D.) in public health, life sciences, or a related field preferred.
Understanding of the rare disease landscape and its challenges.
Experience in building networks and managing partnerships in healthcare or research settings.
Demonstrated success leading multidisciplinary projects and teams.
Proven experience in external engagement and network building, particularly in healthcare or research.

Department

Center for Rare & Neglected Disease (35061)

Department Website

Boler-Parseghian Center for Rare Diseases: https://crnd.nd.edu/ Patient Advocacy Initiative: https://patientadvocacy.nd.edu/

Family / Sub-Family

Academic Aff / Prgrm Admin_Business/Science

Career Stream/Level

EIC 2 Professional

Department Hiring Pay Range

Up to $83,000; commensurate with experience

Pay ID

Bi-Weekly